Gotta reblog this!

My classmate Dave Adamson from my PGCE course in 2010 is doing a 75 mile bikeathon on the 16th of September. The route follows the Olympic cycling route, and includes cycling up Box Hill 6 times!!! I can just about walk up it once!!

The Olympics….

He is raising money for Leukaemia Research as he was diagnosed with leukaemia in 2010 during our course, and as spent the last 2 years undergoing and recovering from treatment.

Please sponsor Dave & pass it on!

http://www.justgiving.com/dave-adamson

PS I also think St George’s Hospital in Tooting is amazing!! Peter was there in 2009 for a serious operation & they were incredible! Thank you for looking after him so well!!

Posted in Cycling, leukaemia, Life, Maths, Money, Photography, Teaching | Tagged , , , , , , | Leave a comment

Fibromyalgia

Fibromyalgia

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I wake up, but I’m not awake, or at least I wish I wasn’t. I should have known it would hit me again soon. PAIN!!! I can’t think! I need painkillers, but I can’t move. I can’t even work out where they are! (even though I always keep a supply of a variety of different painkillers and a full bottle of water right beside my pillow) PAIN!! My head, I can’t move it. I can’t lift my hand to cover my eyes so I can risk opening them…. Maybe if I lie still it will go away….

It doesn’t

I have been going through this thought cycle every half an hour since dawn… It’s not working…. I HAVE to take some painkillers, I have to move! If I sit up I will be able to work out which ones to take…. Migraine definitely, and my neck… Ibuprofen 400mg at least… Come on… Sit up, take the tablets… Do I have to drive today? No… Ok Tramadol too…ok lie down… They will work soon….

Thank God for painkillers, now I can move my arms, curl up, massage my neck, breathe again. Drink some water… Maybe get up? Hot hot shower will help. Still feel like I’ve been bashed up and have the flu… But I can think slowly without it hurting, and I can move!

Today I will be just surviving. Today I will only be doing what is utterly essential. Dinner will be pasta! Shopping will be bread, driving only if I have to. No noise, no music, no talking.

How did I ever get through a day teaching feeling like this? Painkillers yes, but driving was hell. Thank you my HP for getting me up and back the 50 mile round trip on the M25 every day for 2 years. Thank you also that I didn’t cause any accidents! I don’t know how I managed it. There were days I worried I wouldn’t.

And then there were normal days. Days without pain. Days without utter exhaustion. Days when I could come home from work & enjoy the girls singing along to some music on the iPod. Days when I could plan dinners & buy the ingredients on the way home.

With my new medication, the good days are becoming ‘the norm’, what I expect to feel when I wake up… That elusive word to Fibromyalgia sufferers… Rested!! I don’t need 14 hour sleeps every weekend just to recover from the weeks work. I don’t collapse into bed one night midweek at 6pm & sleep till the following morning & wake up feeling as if I’ve been up all night.

But I still get bad days. Days there to remind me that I still have fibromyalgia, that I still have to pace myself, although it goes completely against the grain. Days that I simply have to write off.

That day will not be today. If I had woken up how I have just described this morning, I would not have been able to write this. I would struggle to add 7 and 6, or check my change. I would forget any appointments, unless I had written them in more than one place (the calendar I have found doesn’t work unless you look at it!) Even if I remembered an appointment I would struggle to be on time for it. My head when the fibromyalgia fog descends can’t read the time and can’t work out how long it takes to get places. It can’t even make coherent lists! I have to rewrite to-do lists again once I recover from an attack! They barely make sense.

I am so glad I now have medication that has massively reduced my exhaustion, and has considerably improved my quality of life in the last year. I just wish it would go completely, so I could trust my energy levels again, rather than always feeling I have to hold something back just in case I run out!

UK Fibromyalgia support groups:

Fibromyalgia Association UK

UK Fibromyalgia

FibroAction

NHS Information

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Posted in Fibromyalgia, Life, Pain | Tagged , , , , , , , , , , , , | 4 Comments

The Witch of Portobello

I’ve been off work 11 days & I’ve already read 2 books. I used to read so much, but driving or cycling to work as opposed to taking the train had a significant impact on my reading time, as has had having children.

Up until two weeks ago, I would finally get a bit of free time to sit down with my book and then find my eyes closing after a few lines. At long long last I am not too tired to read!

In January I heard a discussion about ‘World Book Night‘ on the radio and managed to look it up just in time to get registered to be a book giver on April 23rd. I was so excited because my school friend Emma’s book (Room; Emma Donoghue) was on the list of books being given away that I also managed to persuade my daughter and some friends at work to register before the deadline. My daughter picked Paulo Coelho’s ‘The Alchemist’, one of my all time favourite books, so later in the year when I found a set of other books by the same author in a local charity shop, I decided to buy them and read them all.

During the Easter Holidays I finally got a bit of time to myself and started reading ‘The Witch of Portobello’.

I had been trying to gear myself for quite some time to making the leap to becoming self employed, yet never quite having the self confidence to take that final step.

When I trained as a Mathematics Teacher a few years back I was asked by quite a few people if I would be interested in tutoring, so I went as far as making a name for my tutoring company ‘Add-it-1-on Tutoring’ but I’m not sure if it’s the name I don’t like, but I didn’t take it anywhere. I have had a few students, mainly friends of my children, and they all did well in their exams, so maybe I really should start advertising!

I’ve also realised I’m really good at teaching ICT/Maths to adults, and teaching children with ASD and behavioural problems… I guess this is where I get stuck with the advertising…. How do I write that in a shop window & what could a better name for my company be? Do I need a name? How about Barbara Molony ?

I would also really really like to make jewellery, and I have some great ideas for pendants and charms for bracelets, but I need some guidance on how to start! I would like to make my own silver charms, but equipment & materials will cost me money I just don’t have! The alternative would be to get someone else to make my designs, (where do i find such people) or to buy wholesale, but so far the only places that I can find that sell the items I want to sell are in America, so there is the minefield of import taxes etc too! HELP!

Maybe what I should do is ring the Inland Revenue? It would help I think to be registered as a Sole Trader with them in order to be able to buy things wholesale. (It would also help to have some money to buy things with……)

Plan C…. Sell all the things I have been hoarding! During the Easter Holidays I also started selling some shoes I never wear on eBay. They sold quite well, so I started selling some clothes too. The whole exercise was quite time consuming, but while I was on holidays I had the time to do it & quite enjoyed it. Unfortunately while watching things selling (or not as the case may be) on eBay I also noticed some rather fabulous shoes that could fit into the newly cleared space in the hall…. so I don’t think my net income was nearly as high as it could have been, in fact I probably made a loss, but my feet are happy!

I did have a quick look in the attic before going back to work & packing away the eBay bags & parcel tape for a while and there is quite a collection up there that I am determined either to sell on eBay or at a car boot sale, or give away. Our attic is about to collapse under the weight of it all, and most of it has been there for over 5 years, so is not as essential as I thought when I put it up there!

Reading ‘The Witch of Portobello’ gave me the final impetus, the surge of self confidence that I needed to take the step off into the unknown and hand in my resignation. Belief in my ideas, in my abilities, in my self worth.

I have now got plans up to letter H, but plan A has to be to take some time out, sort out my home, my head, and find out what I need to know about surviving financially as a self employed multitasker! Thankfully I get paid until the end of August, so I have a month to do some research ( & hopefully get some more reading time too!!)

PS. Have just noticed how to spell Coelho. This means I have been spelling it incorrectly in my previous posts. Apologies. I am dyslexic & my spell checkers don’t pick up on names.

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Posted in Books, Dyslexia, Life, Money, Self Employment, Shoes, Teaching | Tagged , , , , , , , , , , | 10 Comments

Nothing to do with the Olympics

Today Wilson & I were helping Peter at work

(OK, a little bit to do with the Olympics, as we want to escape a long weekend of house arrest in Weybridge due to the Cycling & go down the coast for a few days)

So I got to see how he does those really high hedges 🙂
Very very grateful to his last customers of the day who let us fall into their pool before we headed home!

Bliss
The Olympic Road Closures in our area are publicised on a website called ‘Go Surrey’

It really should be called ‘STOP Surrey!

Posted in Cycling, Life, Olympics | Tagged , , , , | 4 Comments

Wilson has a new bath

 

 

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As temperatures in London reached 33°  Wilson was very glad of his new bigger bath.  The colour didn’t phase him in the slightest!

Posted in Pets, Photography, Water, Wilson | Tagged | 9 Comments

Nick Danagher

QPR

Yesterday I went to Nick’s funeral.  I felt an immense sense of pride that I had gotten to know Nick over the last 6½ years and was able to be a part of the celebration of his life and sadness over his sudden death.

I’m not sure what to write, except that today Nick you are in my thoughts, and the thoughts of the many many others who attended your farewell yesterday.

The Brittle Bone Society Obituary for Nick

DPAC Obituary for Nick

Surrey Coalition for Disabled people Obituary for Nick

DWP Obituary

Welsh Disability Forum Obituary

Disability Rights UK Obituary

European Network on Independent Living

South East network of Disabled People’s Organisations

United Kingdom Disabled People’s Council

Posted in Life | Tagged , , , , , | 4 Comments

Puncture repair

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Is it just me, or is there something wonderfully reassuring about being able to mend a puncture on a bike, (even when it’s the back wheel of a geared bike!)

I love the fact that puncture repair kits worldwide contain exactly what you need to get the job done, in the tiniest of boxes, in exactly the right quantities.

  • A crayon, to mark the hole
  • Some sandpaper, to sand down the area around the hole so the patch sticks better
  • Glue
  • A variety of different sized patches
  • A tiny piece of chalk to grate over the patch once placed to stop the glue sticking the patch to the tyre
  • And the piéce de résistance… a tiny grater to grate the chalk over the repair

(Can anyone tell me how to do a ‘grave’ accent over the e?)

And there is sufficient in the box to fix at least 3 punctures!

I tried to get my daughter to come and watch me repair the puncture this morning so i could pass on this long lost art from mother to daughter just as my dad taught me, but she ‘couldn’t be bothered’.  That makes me sad.  Being able to repair a puncture is a really rewarding skill.  I remember repairing one once on the side of the road on the way into town (Dublin)  I could never have afforded to pay someone to do it for me!  I still can’t, and neither can she.

Posted in Cycling, Life, Money, Teenagers | Tagged , , , , , | 8 Comments

Wilson may have fallen in the pond

Wilson may have fallen in the pond

Duckweed ready to dry all over my beautifully dry clean carpet!

Posted in Housework, Life, Pets, Water, Wilson | Tagged , , , , , | 5 Comments

Myrtle, Wilson, Peter, and a Tennis ball

Myrtle, Wilson, Peter, and a Tennis ball

All happily reunited in the garden

Posted in Life, Myrtle, Pets, Photography, Wilson | Tagged , , , , , | 2 Comments

Heaven

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The jet stream truly really seems to have moved! And on the best possible of days, the first day of the school holidays. We have become so used to having lovely summers all the way from May until July 20th, and then on the first day of the holidays from school the heavens open and children are stuck indoors complaining of being bored and needing money!

Twice in recent years we have booked last minute breaks to warmer climes because we couldn’t stand one more day of rain & bored teenagers in August! Hopefully this year we will be saved the expense & hassle of having to go abroad if the jet stream stays put right where it is & keeps us bathed in warm sunshine for the next 8 weeks or so!

As the sun has been beaming down on us all day I have finally brushed the cobwebs off my bikini & we have been lazing around in the marina, moving to our mooring for the rest of the summer, giving Wilson numerous swims & catching up on our reading.

I’ve just finished Paulo Cohelo’s Veronika Decides to Die, a good book, but I had guessed the ending near the beginning, which spoiled it for me. My favourite of his books so far is definitely The Witch of Portobello, which I was reading while trying to decide whether to resign from my current job, and which was probably influential in helping me come to the decision to go with my gut! I love reading a book that has me thinking about it when I’m not reading it, and one that when I get to the end I want to go right back to the start again.

Now I have to decide whether to start another book : another Paulo Cohelo one; ‘The Fifth Mountain’, or one that I’ve started already but not got into yet; Dawn French’s ‘A Tiny Bit Marvellous’
Que Insert Poll, but I am on my iPad & it’s too much hassle! 3rd option, fix my messy nails?

First a Ciabatta, Emmental cheese & grape sandwich, then I’ll decide!

Posted in Boats, Books, Life, Pets, Water, Wilson | Tagged , , , , , | 6 Comments